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Section G: Patient organisations

Alcohol Concern
Waterbridge House
32-36 Loman Street
London
SE1 0EE
Web site: www.alcoholconcern.org.uk

Alcohol Concern is the national agency on alcohol misuse.

Alzheimer’s Society
Gordon House
10 Greencoat Place
London
SW1P 1PH
Tel: 020 7306 0606
Fax: 020 7306 0808
Web site: www.alzheimers.org.uk/index.htm

The Alzheimer’s Society aims to maintain, promote and improve knowledge and understanding of dementia. They provide information and advice to carers and professionals about all forms of dementia, caring, legal and financial issues, social and health services and benefits.

British Heart Foundation
14 Fitzhardinge Street
London
W1H 6DH
Tel: 020 7935 0185
Web site: www.bhf.org.uk/index.asp

The British Heart Foundation provides support and information for people with heart disease, their families and carers. They also promote training and education into heart disease, and fund research into causes, prevention and treatment of heart disease.

British Lung Foundation
73-75 Goswell Road
London
EC1V 7ER
Tel: 020 7688 5555
Fax: 020 7688 5556
Web site: http://www.blf.org.uk/Home

The British Lung Foundation provides support and advice for people with lung disease and their carers.

Carers UK
20-25 Glasshouse Yard
London
EC1A 4JT
Tel: 020 7490 8818
Fax: 020 7490 8824
Web site: www.carersuk.org/

Children’s Heart Foundation
Tel: 020 7820 8517
Fax: 020 7735 8718
Web Site: www.childrensheartfoundation.org/

Free phone Helpline: 0808 808 5000 (9.30 am – 9.30 pm Monday to Friday)

A federation of local and national support groups for families of children with heart disorders in the UK and Ireland.

Depression Alliance
35 Westminster Bridge Road
London
SE1 7JB
Tel: 020 7633 0557
Web site: www.depressionalliance.org

DIPEx
41 Cornmarket Street
Oxford
OX1 3HA
Web site: www.dipex.org

DIPEx is an online database of patient experiences of health and illness, provides reliable information on treatment choices and information on where to find support.

Eating Disorders Association
103 Prince of Wales Road
Norwich
NR1 1DW
Tel: 0845 634 1414
Open 8.30am to 8.30pm Monday to Friday and 1.00pm to 4.30pm Saturdays

The Eating Disorders Association provides information, help and support in the UK on all aspects of eating disorders.

Epilepsy Action
New Anstey House
Gate Way Drive
Yeadon
Leeds
LS19 7XY
Tel: 0113 210 880
Fax: 0113 391 0300
Web site: www.epilepsy.org.uk

Epilepsy Action is a working name of the British Epilepsy Association. They provide comprehensive information on epilepsy and how to control it for people with epilepsy, their friends, family and carers. They also have a Helpline for anyone with queries about epilepsy or the group.

Hospital Information Service for Jehovah’s Witnesses
IBSA House
The Ridgeway
London
NW7 1RN
Tel: 020 8906 2211
E-mail: his@wtbts.org.uk

Jehovah’s Witnesses have developed a Hospital Liaison Committee Network to assist healthcare professionals in the treatment of Jehovah’s Witnesses. They have a 24 hour contact number to provide advice and explain the Jehovah’s Witness stance on certain forms of medical treatments.

Long-Term Medical Conditions Alliance (LMCA)
Unit 212
16 Baldwins Gardens
London
EC1N 7RJ
Tel: 020 7813 3637
Fax: 020 7813 3640
Website: www.erpho.org.uk

LMCA is the umbrella body for national voluntary organisations working to meet the needs of people with long-term health conditions.

The Mental Health Foundation
Foundation for People with Learning Disabilities
UK Office
7th Floor, 83 Victoria Street
London
SW1H 0HW.
Tel: 020 7802 0300
Web Site: http://www.mentalhealth.org.uk/

The Migraine Trust
2nd Floor
55056 Russell Square
London
WC1B 4HP
Tel: 020 7436 1336
Fax: 020 7436 2880
Web site: www.migrainetrust.org

The Migraine Trust is the UK’s leading medical research and patient support charity for the condition. The Trust is committed to supporting sufferers and their families by funding and promoting research, improving diagnosis and treatment, providing information and advice, and raising awareness of migraine as a significant public health problem.

Multiple Sclerosis Resource Centre
7 Peartree Business Centre
Peartree Road
Stanway
Colchester
CO3 5JN
National Helpline: 0800 783 0518 (8.30am – 5.30pm Mondays to Fridays)
Website: http://www.ms-uk.org/

Patients Association
PO Box 935
Harrow
Middlesex
HA1 3YJ
Help Line: 0845 4239111
Tel: 020 8423 9111
Fax: 020 8423 9119
Web site: www.patients-association.com/

The Patients Association offer useful information on healthcare in the UK, offering help and support for patients. The web site contains comments on healthcare issues and items in the news, as well as a Guide to Living Wills, how to access your own medical records and other useful advice.

Patient UK
Web Site: www.patient.co.uk

Patient UK provides free information for patients on health and disease, GP leaflets and a directory of patient support groups.

Voluntary Euthanasia Society
13 Prince of Wales Terrace
London
W8 5PG
Tel: 020 7937 7770
Fax: 020 7376 2648
Web site: www.dignityindying.org.uk

The Voluntary Euthanasia Society, VES, actively campaigns to change the law regarding euthanasia. They are the leading UK supplier of Living Wills and provide comprehensive information about the current law and the legal status of living wills.